I am happy to report that his in-person speech therapy sessions will be extended and he will continue working on improving his communication. His labs looked good at clinic and his platelets even came up a little, which we think is because he had to skip 2 medication doses this week for general anesthesia.
He received his infusion which always makes him tired and a little grumpy for the rest of the day. The morning was going well until I finally got my hands on Vincent's actual MRI report, there was an issue getting it to release in the system so we couldn't view it last week, the area of enhancement in his spine that I mentioned was chxt considered treatment effect is concerning me.
I found an error in the report that stated Volorado had radiation, if there is an enhancement that the radiologist thinks is radiation treatment effect but Vincent didn't have radiation, then that is a problem. I have ed his oncologist.
In the meantime, I'm diving deeper into the rabbit hole. I've seen this happen with too many ATRT kids, something is nothing until it's too late. Not on my watch.
I'm not taking any chances. I want clarification, further explanation.
And possibly an MRI sooner then 6 weeks Please pray that whatever this enhancement area is, it is not cancer.